Rusty, the Corolla and I are all back in Florida. Four days, about 1750 miles. The best thing that can be said about the trip is that my back isn’t too sore. And no breakdowns and no near-disasters. The worse thing that happened was that I took a couple of wrong turns. They added a few minutes and a few miles to the trip, but no big deal. I did end up crossing the Hudson River via the GW Bridge, which is never fun, but I made it.
On the last leg I stopped for 2 hours in Ocala to visit my son, Tony. We went to lunch. I hadn’t seen him for nearly a year, so it was nice catching up.Jett was supposed to fly in last night, but, as usual, her flight was delayed for hours. She will join us today.
I was pretty apprehensive about what I would find when I got into the RV. Mice? Spoiled food in the refrigerator? Dry toilets? Well, yes, the toilets were dry, but the seals seem to be okay. Likewise, the refrigerator didn’t seem to be harboring any bacteria colonies (though I will let Jett decide what freezer food can be kept). I even opened the half gallon of ice cream that had been in the freezer for 5 months and it was delicious. So my biggest fears were unfounded.
There were, however, a couple of unexpected problems. The water tasted terrible. I tried making coffee with the tap water and it was undrinkable. I used bottled water for the first cups, then let the water run for about 20 minutes to flush the lines. My coffee this morning, made with tap water, was good.
The other unexpected problems had to do with the TV and internet. The router, located in the shed, was off. All of the general outlets in the shed were out. Something happened during the electrical inspection that resulted in the outlets being disabled. I haven’t figured out what happened yet, but in the meantime I was able to move the router to the A/C outlet, which still had power, and get the internet back. I had to re-enter my ID and password to connect to Netflix, but I now have internet and Netflix.
I had been notified a few days ago that my beautiful bougainvillea bush had broken free from its support and was doubled over. I straightened it up and reattached it to its supporting stake. Hopefully it will survive as it is a beautiful bush.I had loaded the car with as much stuff as would fit, leaving the storage unit (downsized from 5×10 to 5×5) only half full. I think I might be able to fit what is left into a large SUV. Then I can close out the storage unit and save $68 per month.
So, I am pretty much back in residence in Fort Myers and, hopefully, today Jett will be able to say the same. She will continue her immunotherapy treatments here. She already has a meeting set up with the oncologist on Friday.
Today the high temp in Chelsea MA will be in the 50’s; it will be nearly 90 here. Jett will like that.
UMASS Memorial Medical Center
The UMASS ACC
Her final UMASS immunotherapy infusion
Our summer in MA has consisted of (1) numerous visits with Jett’s family, (2) 4 months of hotel living at Extended Stay America (ESA) and (3) about one visit per week to the University of Massachusetts Memorial Medical Center. I have blogged previously about ESA and have mentioned her family several times – though not each and every visit – so now is a good time to talk about our experience with UMASS Memorial Medical Center.
We love it!
When we were deciding, back in May, how to deal with her new cancer diagnosis, one of the options I considered was renting an apartment close to downtown Boston so that she could be treated at the Dana Farber Cancer Institute, the premier cancer treatment center in Massachusetts and one of the finest in the world. A combination of factors, including cost of housing, difficulty in family getting to her to visit and, if we didn’t live in Boston, the difficulty getting her into Boston for treatments led me to decide to seek treatment at UMASS Memorial Medical Center in Worcester. At the time I felt that I was opting for a second-best treatment facility due to its logistical superiority.
I no longer think that it is a second-best anything.
I learned, when we went to UMASS for Jett’s first meeting with her new oncologist, that UMASS was partnered with Dana Farber and provides the same level and quality of cancer treatment as Dana Farber. That was very comforting, as was the fact that her oncologist was, to quote one of the nurses, “THE lung cancer expert at UMASS” with over 30 years of experience treating difficult lung cancer cases.
The UMASS facility consists of four large buildings on a beautiful large hillside campus overlooking Lake Quinsigamond. Jett’s infusions took place in rooms with a lake view, a soothing panorama that made the somewhat traumatic experiences just a bit more pleasant. This is a teaching hospital and one of the 3 Level 1 Trauma Centers in Massachusetts, so two of the buildings are the medical school and the ER. The main building is the hospital. The fourth building – and the one where we spent 90% of our time – was the Ambulatory Care Center, for outpatient care. The top two floors of this 6-story building are almost exclusively devoted to cancer care. The parking garage is attached, so we could park and get treated without needing to go outside. Very convenient.
The staff? Consistently friendly, pleasant, upbeat, caring, considerate and efficient. We never had the kind of poor communication and misunderstanding that tainted our stay in Flagler Beach. The initial plan for chemotherapy didn’t work out well due to a pretty severe neuropathy (numbness in the fingers) side effect, so the plan immediately switched to immunotherapy. I was initially concerned about this because my amateur medical sleuthing suggested that 100% immunotherapy was not nearly as effective as a combination of chemo and immuno. But after the one chemo treatment and four immuno treatments, her tumors had all shrunk, a result which our doctor characterized as “miraculous.”
She just received her fifth immunotherapy treatment and we are now headed back to Florida – a place that, back in June, when we took the train north to Massachusetts, I doubted that Jett would ever see again. The fact that she is getting another winter in Florida is due, I believe, to the quality of care she received at UMASS. The plan is to continue the immunotherapy treatments in Florida, then return to MA next summer.
Worcester will be our summer home again next year. And it is because of UMASS that we are now able to talk about “next year.”