A visit from the kids. And the grandkid.

Kids and grandkid

Kids and grandkid

For no good reason other than that they love their mother, Jett’s two sons came up from Virginia a couple of weeks ago to spend some time with us. They brought Jett’s youngest grandchild, Zachary, as well. As usual, a lot of food was consumed over the course of the two-plus days that they were with us. My goal of losing the weight I have gained this summer took a hit. A real punch in its (pudgy) stomach.

One of the meals was a fabulous breakfast at Harry’s Restaurant, a real old-fashioned diner just down the road from our hotel. If you are ever in Westborough (and why would you be?), this is the restaurant that we would recommend. We also made a trip to Kimball Farms to get some of their outstanding ice cream. Because I needed those extra calories. I did do a disc golf outing but that was just token resistance to the flood of calories.

Seriously, it was great having them around. They are good people who, despite being fans of the Washington Redskins and the Dallas Cowboys, tolerate my Patriots fandom. We watched the Patriots game on the TV during lunch at Owen O’Leary’s. Yes, another meal.

Disc golf

Disc golf

Jett and family at Harry's

Jett and family at Harry’s

Kimball Farms

Kimball Farms


Jett with family

Jett with family

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UMASS Memorial Medical Center

The UMASS ACC

The UMASS ACC

Her final UMASS immunotherapy infusion

Her final UMASS immunotherapy infusion

Our summer in MA has consisted of (1) numerous visits with Jett’s family, (2) 4 months of hotel living at Extended Stay America (ESA) and (3) about one visit per week to the University of Massachusetts Memorial Medical Center.  I have blogged previously about ESA and have mentioned her family several times – though not each and every visit – so now is a good time to talk about our experience with UMASS Memorial Medical Center.

We love it!

When we were deciding, back in May, how to deal with her new cancer diagnosis, one of the options I considered was renting an apartment close to downtown Boston so that she could be treated at the Dana Farber Cancer Institute, the premier cancer treatment center in Massachusetts and one of the finest in the world.  A combination of factors, including cost of housing, difficulty in family getting to her to visit and, if we didn’t live in Boston, the difficulty getting her into Boston for treatments led me to decide to seek treatment at UMASS Memorial Medical Center in Worcester.  At the time I felt that I was opting for a second-best treatment facility due to its logistical superiority.

I no longer think that it is a second-best anything.

I learned, when we went to UMASS for Jett’s first meeting with her new oncologist, that UMASS was partnered with Dana Farber and provides the same level and quality of cancer treatment as Dana Farber.  That was very comforting, as was the fact that her oncologist was, to quote one of the nurses, “THE lung cancer expert at UMASS” with over 30 years of experience treating difficult lung cancer cases.

The UMASS facility consists of four large buildings on a beautiful large hillside campus overlooking Lake Quinsigamond.  Jett’s infusions took place in rooms with a lake view, a soothing panorama that made the somewhat traumatic experiences just a bit more pleasant.  This is a teaching hospital and one of the 3 Level 1 Trauma Centers in Massachusetts, so two of the buildings are the medical school and the ER.  The main building is the hospital.  The fourth building – and the one where we spent 90% of our time – was the Ambulatory Care Center, for outpatient care.  The top two floors of this 6-story building are almost exclusively devoted to cancer care.  The parking garage is attached, so we could park and get treated without needing to go outside.  Very convenient.

The staff?  Consistently friendly, pleasant, upbeat, caring, considerate and efficient.  We never had the kind of poor communication and misunderstanding that tainted our stay in Flagler Beach.  The initial plan for chemotherapy didn’t work out well due to a pretty severe neuropathy (numbness in the fingers) side effect, so the plan immediately switched to immunotherapy.  I was initially concerned about this because my amateur medical sleuthing suggested that 100% immunotherapy was not nearly as effective as a combination of chemo and immuno.  But after the one chemo treatment and four immuno treatments, her tumors had all shrunk, a result which our doctor characterized as “miraculous.”

She just received her fifth immunotherapy treatment and we are now headed back to Florida – a place that, back in June, when we took the train north to Massachusetts, I doubted that Jett would ever see again.  The fact that she is getting another winter in Florida is due, I believe, to the quality of care she received at UMASS.  The plan is to continue the immunotherapy treatments in Florida, then return to MA next summer.

Worcester will be our summer home again next year.  And it is because of UMASS that we are now able to talk about “next year.”

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“Inferno” by Dan Brown

Copyright 2013 by Dan Brown. Published by Anchor Books, a division of Random House LLC.

This is the 4th book featuring Robert Langdon, the Harvard professor and expert in medieval symbols, the most famous being The DaVinci Code. The plot in this one is centered on a brilliant genetic scientist who is a big fan of Dante’s Divine Comedy and believes that the human race is on the brink of extinction due to overpopulation. His solution is to concoct a new plague that will “thin the herd.”  He wants to kill a third of the people on earth.

Initially Langdon’s role in thwarting this plot is unknown as he is, at the outset, suffering from amnesia.  He wakes up in a hospital room in Florence, Italy, with no recollection of the three days prior.  He remembers nothing after an evening walk across Harvard Yard.  He is apparently is involved in something serious as shortly after he regains consciousness a young woman shoots her way into his hospital room, killing a doctor.  Langdon barely escapes with his life in the company of another doctor, a young American named Sienna Brooks.

What follows is an epic chase, through Florence, Venice and Istanbul, with Langdon barely escaping numerous times from a black-clad group of assassins who are just one step behind.  This book has been made into a movie, apparently, and I can only imagine that it is one long, non-stop chase scene.

My objection to the book, initially, was that the chase was implausible.  A Harvard professor and a doctor successfully eluding a large team of assassins?  My other objection was that it reads like a chase scene through a Fodor travel book.  The chase visits all the great tourist sites of all three cities.  Yes, it did make me more interested in visiting all three cities, but great tourism seems tangential to a plot to kill billions.  My feeling, halfway through, was that Dan Brown must have been able to take some very long vacations in Europe and write it all off as “research.”

So two-thirds of the way through, my opinion of the book wasn’t very high.  But he saved up the best for the last third of the book.  Nothing is quite what it seems.  Unraveling what is going on – and who the bad guys are – becomes very engrossing.  He is a fine storyteller and he kept me guessing in this one.

After finishing the book I am left with just one complaint: that Langdon, despite being central to the plot, really doesn’t do anything to affect the outcome.  The result would have been the same if Langdon had never left Harvard.  But, still, the book was well-written and very thought-provoking.

8 out of 10.

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Cleared for a return to Florida

Jett's latest immunotherapy infusion

Jett’s latest immunotherapy infusion

After a single round of chemotherapy back in June, the doctor switched her to immunotherapy due to concern over neuropathy (the loss of feeling in her fingers).  She has received 4 immunotherapy infusions.  Last week she underwent a round of tests to assess the effectiveness of the immunotherapy.  Jett was understandably nervous about what the tests would reveal.  If the treatments were not effective it would be a death sentence.  And we would not be able to return to Florida for the winter.

Fortunately, the assessment was generally positive: while her cancer is not in remission and may never get there, the progress to date has been “miraculous.” Yes, the doctor actually said “miraculous.” All tumors have shrunk in size. When asked if she was well enough to return to Florida for the winter, he said “absolutely.”

So we are currently working out the details of how to get there and how to continue treatments uninterrupted. It is likely that I will drive the Corolla south with Rusty aboard (it is really the only way to get him there), leaving Oct 23 and arriving Oct 26. Because I won’t be towing the RV and won’t be doing much sightseeing (except, perhaps, visiting the Civil War battlefield in Chancellorsville), I won’t treat it as a “trip”.

I will load as much stuff in the car as will fit without crushing the dog. Anything I can’t fit (like my new golf clubs) will go into the storage unit in MA.

Jet will follow, via a nonstop JetBlue flight, arriving Oct 27. She will likely be accompanied by her sister Christine. She will stay with Christine while I am away.

At this point the greatest immediate threat to Jett’s health is her weight. She has lost a couple more pounds and is now in danger of dropping below 90. The doctor is concerned, of course, as she is approaching starvation. He told her if she can’t gain weight she will have to go on an IV feeding regimen. She is now taking the threat seriously and is eating every chance she gets, with the aid of a new anti-nausea medication.

She is not out of the woods, but there is now reason to believe that the forest is not as dark and dense as it once appeared.

She is now looking forward to getting back to Ft Myers – especially since the nighttime temperatures in Massachusetts are now dipping into the 40s.

Categories: Health, Preparation/Planning | 1 Comment

“Judgment Call” by J.A. Jance

Copyright 2012 by J.A. Jance. Published by HarperCollins, New York.

This is one of Jance’s mysteries featuring Joanna Brady, sheriff of Cochise County, Arizona. This is a long series – this is apparently the 15th – so it is very popular. Sheriff Brady is petite, so she isn’t capable of overpowering anyone like Jack Reacher or John Puller can do when necessary, but she is tough. She commands well and has a clear head about what needs to be done.

There are several plots here. The main one involves the murder of the principal of Bisbee High School, found in the desert with four gunshot wounds. This is followed the next day by the murder of a woman who is in charge of an artist conference and painting exhibition. What is the connection? Is there a connection?

The secondary plot involves the death of a copper miner many years before. This one ultimately involves the death of Joanna’s father who was once a miner who became sheriff. This is ancient history. This plot helps advance Joanna’s character and history, but smacks of being thrown in to give the book more weight.

I liked the characters in the book and think that Jance is a fine author. But the plot seems thin to me. The motive of the murderer (spoiler alert: the murders were committed by the same person) seems very thin, on the verge of unbelievable. The motive in the cold case is more believable but less central to the book. And in both cases the identities of the culprits were uncovered due to actions of outsiders rather than due to the diligence of the police. To me this makes the plot rather unsatisfying.

5 out of 10.

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Text messages from my truck

The truck, after texting me

The truck, after texting me

My mother, bless her heart, never learned how to use her cell phone to send text messages. It was just beyond her technical abilities. My truck, on the other hand, sends me text messages frequently. Does that mean that my truck is smarter than my mother? I certainly hope not.

Actually, it is not the truck that sends the messages; it is the Verizon Hum device that is plugged into the truck’s diagnostic port. It constantly monitors the truck’s status and sends me regular reports on the quality of my driving (quite good, thanks for asking). It also sends me a text message when it detects something amiss.

A week ago it sent me a message to let me know that the battery voltage was getting low – not a surprise as the truck had not been started since the middle of June. It warned me that the voltage was so low that the engine might not start. This was a problem as I really needed the truck to be in running condition in the event that a hurricane approached. So I sent off a note to the resort office offering $20 to anyone who would take my truck key, go to my site and start the truck, then let it run for 20 minutes. I got no response.

As luck would have it, I received an email two days later from our new neighbor that we have never met. His name is Joshua and he wanted to let me know that he was in Ft Myers and that everything looked good on our site. He sent me some photos (see the two attached) that not only showed that both the site and the RV were in good shape but induced some serious homesickness in both Jett and me. He also said that he would be there for 2 weeks and was there anything that he could do for us while he was there?

Hmmm… an offer too good to ignore. So I asked if he would mind getting the truck key, try to start it and let the engine run for 20 minutes if it should start. He said he would be happy to do so, reported that the truck started right up, let it idle for 30 minutes and returned the key to the office. He also declined my offer of a $20 payment.

I feel much better now. I know that the truck will start in an emergency and will almost certainly start when I get back to Ft Myers.

Joshua – I owe you!

The RV at rest, photo by Joshua

The RV at rest, photo by Joshua

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Jett’s folding wheelchair

Lightweight wheelchair

Lightweight wheelchair

While still in Florida, it became painfully obvious that Jett was going to need a wheelchair – first to get her north on the train and then to get around to her medical appointments and social engagements. The main requirement was that it be light – I didn’t want to wrestle with a full-size wheelchair on the train. It also had to be easily folded so that I could fit it in the trunk of our Corolla. Durability, though nice, was not a major requirement as it was unclear how long it would be needed or how often it would be used.

It also had to be available within 5 days in Flagler Beach Florida. One obvious source was WalMart. They offer, via their website, a wide variety of wheelchairs and all of them can be had within a few days via pickup at a local store. I ordered the Drive Lightweight Steel Transport Wheelchair. Price was not a huge factor, but the price on this one – under $120 delivered – solidified its place at the top of my list.

I picked it up at the local WalMart – about 10 miles from our campground – the day before we boarded the train and was immediately impressed by its quality construction, its light weight (15 lbs) and the ease of folding it for transport. Jett says it is very comfortable. We have used it a lot and continue to like it very much. A good decision and a purchase that has made our difficult summer just a bit easier.

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Scrubs

Scrubs – the TV series – ran for 9 seasons, from 2001 to 2010. It was popular, of course – any series that runs that long has to be popular – but I was never a regular viewer. This summer it has become an entertainment respite. Jett has been spending a lot of time in bed and the cable TV has been minimal. So when we bought the first season of Scrubs at the New Salem Library yard sale in July and enjoyed it, we started looking for the second season. Then the third season. And the fourth. We are currently awaiting delivery of the seventh season DVDs.

One unique thing about Scrubs is the use of fantasy. John Dorian (J.D., played by Zach Braff) is forever imagining things. For example, it occurs to J.D. that residents and surgeons have a natural competitiveness, like two gangs, so cut to surgeons and residents dancing down the hall of the hospital, like the Jets and the Sharks. And lots of visual gags, many involving Janitor (Neil Flynn). But I hadn’t fully appreciated the role of music in the series. Every episode has some good music, sometimes featuring original artists. But the entire cast – with the exception of Braff and Flynn – are really fine vocalists. Singing doctors. The modern version of singling cowboys, I guess.

In any case, I am now a big fan of Scrubs. I would have to rank the series ahead of Friends and pretty close to Cheers in terms of its comedic quality.

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“Summer of ’68” by David Benjamin

Copyright 2018 by David Benjamin. Published by Last Kid Books, Madison WI.

I have mentioned before that the author is my bff from high school. I have read all of his books and have followed his career closely. He is, in the words of my sister-in-law who has also read at least one of his books, a “wordsmith.” He really knows the language (actually, several languages) and can craft a fine story. I think his best book is his collection of essays, Almost Killed by a Train of Thought, but this novel now ranks second, close behind.

The story centers on a summer camp in the woods of Wadsworth County, WI, in the summer of 1968. The protagonist, Franklin Roosevelt Cribbs, or “Cribbsy”, is an 18-year-old counselor, a freshly-minted high school graduate who is eagerly anticipating his entry into college. But for the summer he is responsible for “Smith 3”, one of the cabins housing 16 11- to 15-year old boys with an artistic streak, most of them refugees from the darkest, most dangerous streets of Chicago. Besides the counselors, the camp is run by a contingent of “Work Campers” who are, without exception, paroled felons doing community service to prove that they are trustworthy enough to be allowed back into society. The elements are in place for a rather “interesting” summer. Which also happens to be the summer of turmoil: the murders of MLK and RFK and the police riot that characterized the Democratic National Convention in Chicago.

Layered on top of this societal and political angst is the presence of a 14-year-old girl who becomes deeply infatuated with Cribbsy. Pathological kids, felonious Work Campers, a hippy-dippy camp director and a jail-bait teen bent on seduction. What could go wrong?

A lot.

Cribbsy skirts with statutory rape, the kids of Smith 3 come close to mob murder and Cribbsy discovers, eventually, that he is not nearly the complete loser that he had convinced himself he was. This is all related in a compelling sequence of chapters, each focusing on one of the more interesting characters in camp, punctuated by entries in Cribbsy’s journal and poems penned by the girl. The dialog is realistic, the stories believable. And it is all wrapped in some pretty insightful commentary on the state of America in the summer of ’68.

The commentary on racial relations were, in my view, particularly insightful. One example: the young girls at Camp Nantoka liked to run their fingers through the hair of Cribbsy (blond) and the other counselor in Smith 3 (redhead). They had never felt soft hair. I had never thought that soft hair would appeal to young black girls, but it rings true. Did the author have that experience in real life?

That question – which of these experiences were derived from David Benjamin’s life? – was in the back of my mind as I read the book. I, after all, spent most of that summer with him (and he was not a camp counselor that summer). I even worked at the Oconomowoc Canning Company with him, so I know that those experiences that he included in the book were true because I shared them with him. There were many other scenes in the book that I know are autobiographical, but I won’t mention them. You can read the book knowing that some of it is true. But which parts?

7.5 out of 10.

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Rockport and the “George Stone discount”

Rockport Harbor and Motif #1

Rockport Harbor and Motif #1

Jetty

Jetty

Roy Moore Lobsters

Roy Moore Lobster Co

Jett and I traveled to Rockport MA a week ago, to visit her mother’s grave and to generally enjoy Rockport, her childhood summer home and still one of our favorite places on the planet. Her brother, George Stone, lived there his entire life. He was a bit of a character (an understatement) but a lovable one. Longtime residents of Rockport all remember him fondly. This worked in our favor, unexpectedly, as we had lunch at Rockport’s famous Roy Moore Lobster Company, which is more retail lobster shop than restaurant, but does have a few picnic tables out back where you can sit and devour the lobsters you purchase inside. We did just that. I ordered the lobster roll and a cup of fish chowder and Jett had a couple of shrimp cocktails. When time came to settle the bill, we were informed that we were receiving the “George Stone discount” which slashed our tab from over $30 to just $20. A pleasant and unexpected bonus to our day in Rockport. All I can say is thank you, George, for being so lovable.

Bearskin Neck

Bearskin Neck

Lunch

Lunch

We also strolled the length of Bearskin Neck, the artsy-fartsy road to the jetty, consumed some ice cream, watched the waves and bought some candy at Tuck’s Candy Factory. The usual stuff. We hadn’t been to Rockport in 2 years and found that very little had changed.

And that’s a good thing.

Jett resting after ice cream

Jett resting after ice cream

Categories: Family, Food, MA, Places | 2 Comments